Inauguramos bonita iniciativa de la Fundación Gray

Hola a todos!!

Compartimos de una forma muy especial esta publicación de la Fundación Gray. Mensualmente darán a conocer una de las familias que están luchando contra la enfermedad de Batten.

Nos sentimos orgullosos de inaugurar esta bonita iniciativa de sensibilización.

Aprovechamos para comentaros que pronto tendremos información sobre dos vías de investigación prometedoras complementarias a la terapia génica y que organizaremos un evento desde Columbus para ayudar a que se desarrollen lo más rápido posible. No nos cansamos de daros las gracias a todos por hacer posible que nuestro viaje a la esperanza siga adelante!!

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Each month, we will be posting about a family whose lives have been impacted by Batten Disease. For this month's #FamilyFeatureFriday, please meet Gustavo, Ana, Marta, & María, a family from Castellón, Spain, who have found a newfound sense of hope through their participation in the CLN6 gene therapy clinical trial. “We are so grateful to the Gray Family and their Foundation for their firm purpose of finding a cure for this serious illness. The donations of so many good people help us to keep alive the hope of being able to improve and even save the lives of our daughters… barely three years ago was something impossible, unthinkable, now, with your help, our journey to Hope continues!” Click the link in our bio to help us help all families affected by this disease! #CureBatten

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